What is Endometriosis?
Endometriosis is when lining similar to the lining of the uterus, grows outside of the uterus. Endometriosis can grow on any internal organ, there have even been cases of Endometriosis found on the brain!
Endometriosis affects 1 in 10 women worldwide.
Endometriosis can cause debilitating pain, heavy bleeding, fertility issues, overwhelming fatigue, mood swings, hormone imbalances & so much more.
Endometriosis can affect every aspect of your life. Your social life, your physical health & wellbeing, your self confidence and especially your mental health.
I was diagnosed with Endometriosis 13 days before my 21st birthday
Since the age of 13, I had spent every month in the ED at my local hospital in excruciating pain. I also had significant bleeding, extreme fatigue, hormone headaches that lasted for a week at a time among other side effects.
It took all the way until the age of 17, for me to be referred to the gynaecology unit of the hospital. I then spent 18 months trying all different kinds of birth control, recommended by the gynaecologist, before being put on a list for surgery.
Surgery rolls around and finally, I had a diagnosis!
The momentary relief of having an answer was quickly overwhelmed by uncertainty & fear. I had only briefly heard of Endometriosis when the gyno had handed a 2 page brochure titled "What is Endometriosis"
The next few months were spent researching my absolute butt off to know as much as I could about Endometriosis & how I could use that knowledge to benefit myself & my future with this new diagnosis.
I found an Endometriosis Specialist in Sydney who I was able to get in to see. My first consultation with Professor Alan Lam was the most overwhelming sense of relief. He believed me & was willing to put me on a surgery waiting list straight away to give me the best chance at having a life in my 20s.
Less than a year later, I was in surgery having my Endometriosis excised. Ever since, my body found it's new normal and things began to become consistent and calm and less painful. That was almost 3 years ago now.
Endometriosis is an incurable disease. Continuing laprascopic surgery of excision is the only way to successfully manage Endometriosis in a long term way.
Yes, birth control is an option. But birth control can be mask the Endo symptoms but won't actually stop the growth of the Endometriosis. Hysterectomy is not a cure or a way to rid Endo from your body either, as Endometriosis can grow on any of your internal organs.
Here are some resources that have helped me in my Endometriosis journey:
Nancy's Nook Endometriosis Education
Endometriosis Australia Education & Discussion Group
Nay-Endosister (Worldwide Endo Support Group)
Endometriosis Support Group